My best advice to you would be up front with teachers and counselors. I am a very high functioning epileptic, so everyone always thought I just had a hard time focusing. I wasn't diagnosed until I was in High School so things were opposite for me than they are your son. Hi there my name is Katie and I've got absence epilepsy. From his point of view, I was 20 feet across the room, then when he came out of it, I was just 6 inches away - I'll never forget the look on his face that day!Īny other tidbits of information you can share that would help us make life easier for him while we try to find the right medication? I've learned a few things on my own - behavioral things, like not approaching him when he's having a seizure. Are the "foggy" days due to the medicine, disruptions in his sleep, or just from multiple seizures? He's having focus issues, poor memory recall, generalized "foggy" days, and of course, missed information and blank holes in tests due to seizures.ĭue to a lack of information from the neurologist, I have nothing to really share with the school regarding how the epilepsy affects his schoolwork and why. His teacher is asking for a 504 plan to make accommodations for him, and I need some help in determining what types of accommodations we should be asking for.ĭoes anyone have any advice as to what accommodations should be made for a child with Absence Epilepsy? In the meantime, my son - who has always been a great student (excellent grades, good behavior, participates in the gifted program) - is now starting to struggle in school. We've had a terrible time getting any help from our neurologist - we have an appointment with a new doctor next week and are hoping for a better response. My 8 year old son was diagnosed with Absence Epilepsy two months ago, and while we've seen a reduction in the number of epsiodes with Zarontin (ethouximide), the seizures continue.
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